WEBVTT 00:00:00.000 --> 00:00:01.250 align:middle line:90% 00:00:01.250 --> 00:00:03.570 align:middle line:90% "To the God of Radiation." 00:00:03.570 --> 00:00:05.850 align:middle line:84% And I think even if there's one more after this, 00:00:05.850 --> 00:00:08.200 align:middle line:90% we'll just stop with this one. 00:00:08.200 --> 00:00:09.720 align:middle line:90% "To the God of Radiation." 00:00:09.720 --> 00:00:14.480 align:middle line:84% So my treatment chemo, mastectomy, 00:00:14.480 --> 00:00:18.110 align:middle line:84% PET scan which came back with what they call NED. 00:00:18.110 --> 00:00:21.360 align:middle line:84% In breast cancer, you never are in remission, you're NED. 00:00:21.360 --> 00:00:22.380 align:middle line:90% Hi, I'm NED. 00:00:22.380 --> 00:00:25.310 align:middle line:90% It means No Evident Disease. 00:00:25.310 --> 00:00:31.580 align:middle line:84% And so at this point, I'm in radiation. 00:00:31.580 --> 00:00:35.430 align:middle line:90% And it was the final-- 00:00:35.430 --> 00:00:39.020 align:middle line:84% It was like, I don't know, two or three days from the final day 00:00:39.020 --> 00:00:39.840 align:middle line:90% of radiation. 00:00:39.840 --> 00:00:43.400 align:middle line:90% And I had gotten it down. 00:00:43.400 --> 00:00:45.650 align:middle line:84% Radiation, you go in every day for 30 days 00:00:45.650 --> 00:00:46.740 align:middle line:90% except for the weekends. 00:00:46.740 --> 00:00:49.310 align:middle line:90% So there's a system. 00:00:49.310 --> 00:00:52.170 align:middle line:84% And in this particular place you walked in, 00:00:52.170 --> 00:00:54.778 align:middle line:84% you whipped your shirt off in front of god and everybody. 00:00:54.778 --> 00:00:56.820 align:middle line:84% Whoever was in the room, there were three people, 00:00:56.820 --> 00:00:59.220 align:middle line:84% eight people, two people, no people, didn't matter. 00:00:59.220 --> 00:01:02.780 align:middle line:84% Rip your shirt off, lay down, and then they line everything up 00:01:02.780 --> 00:01:03.390 align:middle line:90% for you. 00:01:03.390 --> 00:01:06.030 align:middle line:84% So I walked into the room already like this. 00:01:06.030 --> 00:01:08.720 align:middle line:84% And then my oncologist was in there, [CHUCKLES] 00:01:08.720 --> 00:01:10.290 align:middle line:90% which is never a good sign. 00:01:10.290 --> 00:01:14.700 align:middle line:84% Also, she had no reason to see any of this. 00:01:14.700 --> 00:01:17.622 align:middle line:84% At that moment, I was like, oh, hi. 00:01:17.622 --> 00:01:22.610 align:middle line:84% [CHUCKLES] Sorry, I didn't know you were going to be in here. 00:01:22.610 --> 00:01:25.520 align:middle line:84% And she said, all right, well, we 00:01:25.520 --> 00:01:29.250 align:middle line:84% did a scan during your last radiation appointment. 00:01:29.250 --> 00:01:32.138 align:middle line:90% And there's a thing in there. 00:01:32.138 --> 00:01:33.180 align:middle line:90% There's a bit of mustard. 00:01:33.180 --> 00:01:34.890 align:middle line:90% We don't know what it is. 00:01:34.890 --> 00:01:36.750 align:middle line:90% It could be cancer. 00:01:36.750 --> 00:01:40.370 align:middle line:84% It looks like an inflamed lymph node. 00:01:40.370 --> 00:01:44.120 align:middle line:84% Or it might just be a bit of inflammation generally. 00:01:44.120 --> 00:01:45.840 align:middle line:90% It might not be cancerous. 00:01:45.840 --> 00:01:48.740 align:middle line:84% But because of where it is, we can't actually 00:01:48.740 --> 00:01:51.360 align:middle line:90% do a biopsy on it. 00:01:51.360 --> 00:01:52.730 align:middle line:90% It's too deep into-- 00:01:52.730 --> 00:01:54.420 align:middle line:84% it was almost on my shoulder blade, 00:01:54.420 --> 00:01:57.470 align:middle line:84% if you can imagine, going all the way back. 00:01:57.470 --> 00:01:59.900 align:middle line:90% And I said, well, OK. 00:01:59.900 --> 00:02:01.380 align:middle line:90% Well, what can we do about it? 00:02:01.380 --> 00:02:04.470 align:middle line:84% And she said, well, we can give it an extra blast of radiation, 00:02:04.470 --> 00:02:06.390 align:middle line:90% a booster is what they call it. 00:02:06.390 --> 00:02:08.330 align:middle line:84% Some people do them, some people don't. 00:02:08.330 --> 00:02:11.600 align:middle line:84% But basically they go over and above your lifetime allotment 00:02:11.600 --> 00:02:13.640 align:middle line:84% of radiation that you're supposed 00:02:13.640 --> 00:02:18.240 align:middle line:84% to get in order to hopefully fry it, 00:02:18.240 --> 00:02:20.100 align:middle line:84% I guess is the best way to think about it. 00:02:20.100 --> 00:02:23.010 align:middle line:84% And she said the problem is because of where it is, 00:02:23.010 --> 00:02:26.910 align:middle line:84% it's going to go through this portion of your shoulder 00:02:26.910 --> 00:02:29.510 align:middle line:84% basically where all of your muscles and nerves 00:02:29.510 --> 00:02:30.840 align:middle line:90% kind of pass through that. 00:02:30.840 --> 00:02:34.470 align:middle line:84% And she said because I had had nerve damage from my mastectomy, 00:02:34.470 --> 00:02:36.380 align:middle line:84% she said, chances are you won't be 00:02:36.380 --> 00:02:39.600 align:middle line:84% able to recover from that fully as a result of this treatment. 00:02:39.600 --> 00:02:43.130 align:middle line:84% Also, we don't know but you could end up 00:02:43.130 --> 00:02:44.910 align:middle line:90% with nerve damage in the future. 00:02:44.910 --> 00:02:47.898 align:middle line:84% And I was like, what could that look like? 00:02:47.898 --> 00:02:50.190 align:middle line:84% And she was like, well, it might just be some stiffness 00:02:50.190 --> 00:02:53.420 align:middle line:84% or you could feel like your arm's on fire 00:02:53.420 --> 00:02:55.260 align:middle line:90% for the rest of your life. 00:02:55.260 --> 00:02:56.890 align:middle line:90% I was like, oh, great. 00:02:56.890 --> 00:02:59.840 align:middle line:84% And she said, and it could happen in two days 00:02:59.840 --> 00:03:02.160 align:middle line:90% and it could happen in 20 years. 00:03:02.160 --> 00:03:04.680 align:middle line:84% And we don't really understand why this happens. 00:03:04.680 --> 00:03:07.060 align:middle line:84% And we don't really understand the mechanisms of it. 00:03:07.060 --> 00:03:08.520 align:middle line:90% We don't really understand. 00:03:08.520 --> 00:03:09.780 align:middle line:90% I said, OK. 00:03:09.780 --> 00:03:11.400 align:middle line:90% Well, what would you do? 00:03:11.400 --> 00:03:14.638 align:middle line:84% And I love this radiation oncologist. 00:03:14.638 --> 00:03:16.430 align:middle line:84% She said, I have honestly been up all night 00:03:16.430 --> 00:03:19.520 align:middle line:84% thinking about what I would tell my daughter, or my mother, 00:03:19.520 --> 00:03:21.300 align:middle line:84% or what choice I would make myself. 00:03:21.300 --> 00:03:24.440 align:middle line:84% And she said, for me, it's as close to 50/50 as anything 00:03:24.440 --> 00:03:26.040 align:middle line:90% I've experienced in my career. 00:03:26.040 --> 00:03:28.880 align:middle line:84% And I don't feel like it's really right for me to tell you 00:03:28.880 --> 00:03:29.670 align:middle line:90% what to do. 00:03:29.670 --> 00:03:32.940 align:middle line:84% But I can be honest that I don't know what to do. 00:03:32.940 --> 00:03:35.010 align:middle line:84% And that's a hard thing for a doctor to say, 00:03:35.010 --> 00:03:37.140 align:middle line:84% I have discovered, among my many, 00:03:37.140 --> 00:03:38.760 align:middle line:90% many encounters with doctors. 00:03:38.760 --> 00:03:40.650 align:middle line:84% And I appreciate her a great deal for that. 00:03:40.650 --> 00:03:43.140 align:middle line:84% And that's what this poem is about, 00:03:43.140 --> 00:03:45.200 align:middle line:84% is about trying to make that decision. 00:03:45.200 --> 00:03:48.350 align:middle line:90% "To the God of Radiation." 00:03:48.350 --> 00:03:50.900 align:middle line:84% Given the unexpected choice between 00:03:50.900 --> 00:03:52.230 align:middle line:90% uncertain death-- 00:03:52.230 --> 00:03:53.730 align:middle line:90% Oh, I forgot the punchline. 00:03:53.730 --> 00:03:55.800 align:middle line:84% I said, what if we don't radiate it? 00:03:55.800 --> 00:03:59.370 align:middle line:84% And she said, well, [CHUCKLES] if it is cancer, 00:03:59.370 --> 00:04:01.170 align:middle line:84% if it does turn out to be cancer, 00:04:01.170 --> 00:04:03.260 align:middle line:84% we can't perform any more radiation 00:04:03.260 --> 00:04:06.320 align:middle line:84% because you have had more than your lifetime's worth. 00:04:06.320 --> 00:04:09.140 align:middle line:84% Chemotherapy was unfortunately completely 00:04:09.140 --> 00:04:11.160 align:middle line:90% useless against my cancer. 00:04:11.160 --> 00:04:12.300 align:middle line:90% It didn't shrink it at all. 00:04:12.300 --> 00:04:15.470 align:middle line:84% And they couldn't perform another surgery 00:04:15.470 --> 00:04:18.200 align:middle line:84% both because of where it was and because my skin has already 00:04:18.200 --> 00:04:19.620 align:middle line:90% been so damaged by radiation. 00:04:19.620 --> 00:04:22.850 align:middle line:84% So basically, it would be untreatable 00:04:22.850 --> 00:04:26.162 align:middle line:90% and would eventually kill me. 00:04:26.162 --> 00:04:28.370 align:middle line:84% [CHUCKLES WRYLY] So sorry, that was an important part 00:04:28.370 --> 00:04:29.190 align:middle line:90% of the story. 00:04:29.190 --> 00:04:30.680 align:middle line:90% Back to the poem. 00:04:30.680 --> 00:04:31.870 align:middle line:90% "To the God of Radiation." 00:04:31.870 --> 00:04:34.020 align:middle line:84% Given the unexpected choice between 00:04:34.020 --> 00:04:37.030 align:middle line:84% uncertain death and certain damage, 00:04:37.030 --> 00:04:39.120 align:middle line:90% I find in the mirror a woman-- 00:04:39.120 --> 00:04:41.820 align:middle line:90% breastless, burned-- who, 00:04:41.820 --> 00:04:43.440 align:middle line:90% in an advisory capacity, 00:04:43.440 --> 00:04:46.020 align:middle line:90% asks, how much do you 00:04:46.020 --> 00:04:48.150 align:middle line:90% want to live? 00:04:48.150 --> 00:04:50.550 align:middle line:90% Enough. 00:04:50.550 --> 00:04:52.060 align:middle line:90% O God of Radiation, 00:04:52.060 --> 00:04:52.650 align:middle line:90% let your light 00:04:52.650 --> 00:04:54.370 align:middle line:90% like a ship pass through me, 00:04:54.370 --> 00:04:56.020 align:middle line:90% Your radiance exposing, 00:04:56.020 --> 00:04:57.840 align:middle line:90% exposing what's inside me 00:04:57.840 --> 00:05:00.150 align:middle line:90% like film a God takes-- 00:05:00.150 --> 00:05:02.250 align:middle line:90% but must you clatter the eaves 00:05:02.250 --> 00:05:03.960 align:middle line:90% of my scapula, scurry 00:05:03.960 --> 00:05:06.600 align:middle line:84% the grasshopper nest of my heart, scythe my nerves 00:05:06.600 --> 00:05:07.980 align:middle line:90% and cobweb my muscles 00:05:07.980 --> 00:05:08.700 align:middle line:90% to the rungs 00:05:08.700 --> 00:05:09.670 align:middle line:90% of my ribs? 00:05:09.670 --> 00:05:13.376 align:middle line:90% How much more can one body take? 00:05:13.376 --> 00:05:13.876 align:middle line:90% Enough. 00:05:13.876 --> 00:05:17.250 align:middle line:90% 00:05:17.250 --> 00:05:20.380 align:middle line:84% Light every deadly cell like a wick 00:05:20.380 --> 00:05:23.200 align:middle line:84% burning in the paper lantern of my chest-- 00:05:23.200 --> 00:05:24.600 align:middle line:90% My chest, a thing 00:05:24.600 --> 00:05:26.070 align:middle line:90% so ephemeral 00:05:26.070 --> 00:05:30.480 align:middle line:90% yet held so firmly in your fist. 00:05:30.480 --> 00:05:31.500 align:middle line:90% Thank you so much. 00:05:31.500 --> 00:05:34.850 align:middle line:90% [APPLAUSE] 00:05:34.850 --> 00:05:40.000 align:middle line:90%